Céline Dion knows that Stiff Person Syndrome, the rare condition that causes uncontrollable and often violent muscle spasms, will always be a part of her life in some way. In a new interview with Vogue France, published Monday, Dion shared health updates and said she’s “well, but it’s a lot of work. I’m taking it one day at a time.”

“I haven’t beat the disease, as it's still within me and always will be,” she said. “I hope that we’ll find a miracle, a way to cure it with scientific research, but for now I have to learn to live with it. So that’s me, now with Stiff Person Syndrome.”

The 56-year-old singer shared her diagnosis in early 2022 after a series of postponements for her tour. She largely disappeared from public outings, but she has recently been making notable appearances, including presenting Taylor Swift with her record-breaking fourth Album of the Year award at the 2024 Grammys and hugging it out with the singer backstage. Dion told Vogue that “five days a week I undergo athletic, physical and vocal therapy. I work on my toes, my knees, my calves, my fingers, my singing, my voice... I have to learn to live with it now and stop questioning myself.”

Dion is focused on moving forward, done lingering on the existential woe.

“Life doesn’t give you any answers. You just have to live it!” she said. “I have this illness for some unknown reason. The way I see it, I have two choices. Either I train like an athlete and work super hard, or I switch off and it’s over, I stay at home, listen to my songs, stand in front of my mirror and sing to myself. I’ve chosen to work with all my body and soul, from head to toe, with a medical team. I want to be the best I can be. My goal is to see the Eiffel Tower again!”

The interview turned philosophical as she looked forward: “People question life all the time,” she said. “Stop questioning life, we should be living it. It’s not always beautiful, but it’s here.”

That seeming acceptance, however, doesn’t come easily. “It’s hard, I’m working very hard and tomorrow will be even harder. Tomorrow is another day,” she said. “But there's one thing that will never stop, and that’s the will. It’s the passion. It's the dream. It’s the determination.”

Though she couldn’t say when or even whether she’ll be ready to perform again publicly, she emphasized the “gift” of support from her loved ones and “the means to have good doctors and good treatments.”

“What’s more, I have this strength within me,” she said. “I know that nothing is going to stop me.”

Her dream, she said, is to “live in the present.”

“I am truly very lucky,” Dion said. “And I am honored to be doing a photo shoot for Vogue France because although I had better health and beauty at 30, I didn’t get asked to do one then. I am very proud that at 55, I am being asked to reveal my beauty. But what is beauty? Beauty is you, it’s me, it’s what’s on the inside, it’s our dreams, it’s today. Beauty is what surrounds us, it is there. There are people that see it, and there are people that observe it. Today, I am a woman who feels strong and positive about the future. One day at a time.”